::
Thalassaemia ::

Thalassaemia What is it?

Thalassaemia is an inherited blood disorder and can be simply stated as the inability of the body to produce adequate amount of Hemoglobin in the red blood cells. The result is severe anemia. Children suffering from this blood disorder require a blood transfusion every month of their lives in addition to treatment for iron overload due to the excessive number of transfusions. The only permanent cure for Thalassaemia is a bone marrow transplant. The only way to eliminate Thalassaemia is to prevent it


What Thalassaemics Need:

1. The body of a Thalassaemic cannot produce red blood cells, which means a blood transfusion is required every 3-4 weeks. Therefore Thalassaemics constantly require screened healthy blood.

2. Due to repeated blood transfusions iron gets accumulated in the body. This excess iron must be removed from the body by using iron chelators (an injection -'Deferral' is most commonly used). The injection is given through a chelation pump and is administered in 8 hours, 20 days a month. These patients may also suffer from other Thalassaemia related complications such as splenectomy, infections, reactions, etc and must be properly cared for.

3. Thalassaemia is a disease, which not only effects the patient but also leaves a devastating psycho-social effect on the family of the patient. Therefore Support Group Therapy is required to help the families of patients pull through this traumatic experience.

4. Most Importantly They Need YOUR Help & Support.